Help save little Ayah, the 14 months old girl who needs a drug that costs $2.1 million to save her life
This is Ayah (born on January 15, 2020), a bubbly little princess who likes to smile a lot. Ayah has a rare genetic and degenerative disorder called SMA (Spinal Muscular Atrophy) type 2. SMA is a rare genetic disease that affects the central nervous system, voluntary skeletal muscle movement, and the peripheral nervous system (the connection between the central nervous…
SMA is a rare genetic disease that affects the central nervous system, voluntary skeletal muscle movement, and the peripheral nervous system (the connection between the central nervous system and the rest of the body). As a result, SMA affects basic motor functions such as walking, hand movements and feeding. After progression, the patients lose the ability to swallow, breathe and eventually die.
We hope to get Ayah treated as soon as we raise all the funds needed. $2.1 million will be used to buy the drug zolgensma. The remaining $300,000 and any additional donations will be used for treatment at Boston Children’s Hospital, travel and accommodation during our stay in the USA. Thank you so much for your kind donations!!
Please follow Ayah´s journey on :
facebook: Little Ayah
Instagram: @little.ayah